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Archive: July 2015 (X)

  • This post was written by Elizabeth Pell

    NCI has been recognized as a significant data source to states and national advocacy organizations for evaluating important aspects of community integration for people with intellectual and/or developmental disabilities (I/DD). Two recent publications highlight NCI’s contributions:

    • Earlier this month United Cerebral Palsy (UCP) published its annual state ranking of state Medicaid-funded services for those with intellectual and/or developmental disabilities. In past rankings, UCP gave states credit for being NCI members, but did not include each member states’ performance on NCI outcome measures. For this year’s ranking, UCP’s report notes changes were made to collect more person centered and outcome oriented data examining community integration. One of the primary changes was to include 9 NCI measures from the Adult Consumer Survey into the ranking analysis. The analysis also gave participation points for conducting the NCI Child and Family Surveys. According to the report, states that do not participate and track NCI outcomes may lose up to 20 points from the 100 point scoring.  Link to UCP’s report:
    • NCI data is noted as a substantial form of evidence on the “quality of services available to people with disabilities and the outcomes of those services” in a new joint paper by the American Association on Intellectual and Developmental Disabilities (AAIDD) and the Association of University Centers on Disabilities (AUCD). Released to mark the 25th anniversary of the ADA, the paper describes how AUCD and AAIDD “think the next 25 years of the ADA should translate into access, opportunity, and support for people with disabilities.” Titled, Community Living and Participation for People with Intellectual and Developmental Disabilities: What the Research Tells Us, the paper examined U.S. studies over the past 50 years on the experience of people with I/DD.  Greater choice, satisfaction, housing stability, higher levels of adaptive behavior, and community participation were found to be positively related to smaller and more integrated residential settings. NCI data on outcomes by residential type confirm that individuals’ choices and decision-making experiences differ greatly by type of residence.  Adults with I/DD who live in their own home report more choice than those living in an institution, a community group residence, with family, or in a foster care home. Link to paper: