Category: Consumer Survey (X)
The NCI sub-domain entitled “Rights/Respect” was designed based on the idea that the protection and affirmation of an individual’s rights is a critical gauge of service quality. The NCI Adult Consumer Survey uses several questions to ascertain whether the respondent receives the same respect and protections as others in the community.
The rights/respect section of NCI identifies:
1. The proportion of people whose basic rights are not respected by others, including (a) having one’s mail opened without permission, (b) having restrictions on being alone with others, (c) having restrictions on using the phone, and having people enter their (d) home and (e) bedroom without permission.
2. The proportion of people who have participated in a self-advocacy group meeting, conference, or event.
3. The proportion of people who report satisfaction with the amount of privacy they have.
4. The proportion of people indicating that most (a) day, (b) work, and (c) home support staff treat them with respect.
Here is a selection of national results from the 2010-2011 Adult Consumer Survey:
In Community Based
In Individual Home
In Parent's Home
Home is entered without permission
Bedroom is entered without permission
Mail is opened without permission
Can be alone with visitors at home
Allowed to use phone/internet when desired
Have participated in a self-advocacy event
Have enough privacy at home
Staff at home is nice and polite.
Staff at work is nice and polite
Staff at day program is nice and polite
Interestingly, many of the results seem to be affected by the residential situation of the respondent. For example, 86% of respondents living in an institutional setting say that they are allowed to use the phone/internet when they want, compared with 90% of those who live in their parent’s home. Fifteen percent of respondents living in their parent’s home claim that their mail is opened without permission, while only 6% of respondents living in institutional settings assert that their mail is opened without permission. 23% of respondents living in their parent’s home have participated in a self-advocacy event, compared with the national average of 31%. Eighty-six percent of respondents living in an institutional setting assert that they have enough privacy at home, compared to the national average of 91%.
States can use national and state-specific data on rights and respect towards many ends. Results on this sub-domain can be used as an outcome measure in assessments of service quality. For example, The Massachusetts Department of Developmental Services (DDS) compiled a Quality Assurance Brief (QAB) entitled “Protection and Affirmation of Rights.” (http://www.mass.gov./eohhs/docs/dmr/qa-assurance-brief-v1i3.pdf). Mass. DDS has established a set of outcomes that form a basis for assessing service quality. This QAB uses NCI data and data gathered from licensure and certification reviews to evaluate whether the state is fulfilling the outcome of protecting and affirming the rights of those receiving services. At the end of the QAB, Massachusetts DDS has identified ways in which it will follow up and implement quality improvement initiatives and activities.
For more data on rights/respect and other indicators, see the ‘Reports” page at http://www.nationalcoreindicators.org/resources/. And, as always, we would love to see what you are doing with NCI data. Let us know by sending an email to firstname.lastname@example.org.
Oct 5th, 2012 by | No Comments Yet
NCI is excited to introduce a new User-Friendly version of the Consumer Outcomes Report. The Report uses plain language and pictures to describe select items from the Consumer Outcomes Report. We owe a great thanks to California’s Consumer Advisory Committee (CAC) who were instrumental in helping develop this new way of presenting NCI data.
The inaugural “What We Have Learned from the NCI Adult Consumer Survey” shows 2010-11 National NCI data. In future years, along with the national report, each state will receive its own report showing the state’s specific data. The User-Friendly Reports will be released with the national data and located on the NCI website under the User-Friendly Reports section of the Reports Page.
Thanks again to the CAC! We look forward to getting your feedback
This past weekend Parade Magazine’s feature story on “Autism’s Last Generation” cited NCI. The article references an NCI Data Brief on Autism from 2008.
You can read the article here: http://www.parade.com/health/autism/featured/autisms-lost-generation.html
We are also pleased to announce that three new NCI Data Briefs have just been posted to www.nationalcoreindicators.org, including an update of the Autism issue. You can find them on the reports page.
Spread the word and join us in observing National Autism Awareness month!