Category: Other (X)
Jan 10th, 2018 by | No Comments Yet
In coordination with his previous research at the Lurie Institute at Brandeis University, NCI's newest team member, Henan Li, PhD., used NCI data in a policy brief entitled Health and Healthcare Access among Adults with Autism Spectrum Disorder and Intellectual Disability: 2015 - 2016
The Policy Brief uses 2015-16 NCI Adult Consumer Survey data to look at health and healthcare disparities faced by adults diagnosed with Autism Spectrum Disorder (ASD). Henan's research found:
- Adults with ASD and ID reported poorer general health than the general adult population of the United States.
- About 29% of adults with ASD and ID reported at least one chronic health condition such as diabetes, hypertension or high cholesterol.
- More than half of the respondents reported at least one diagnosis of mental illness/psychiatric condition (anxiety disorders, mood disorders, schizophrenia etc.). Among those, three out of five took medication to treat those conditions.
- Most respondents had access to primary care doctors, annual health exams, dental care, and vision care. However, access to different types of preventive health screenings were uneven.
Take a look at this interesting policy brief.
The values remain the same.
As we move into the early days of 2018 one phrase keeps coming back to mind: “The only thing constant in life is change”.
The daily (or hourly) news brings an endless stream of information, and much of it is describing how things are changing from what they used to be. Whether you believe we are seeing change for the better or change for the worse, we can all agree we are in a time of change.
With all this talk of change, we also remember the values that are enduring. Looking back over the past 20 years of the NCI project has affirmed the consistency of those core values that were identified by the State partners who developed this project in the mid 1990s. Those were changing times as well.
These materials were put together to help demonstrate where we are – and to remind us of where we need to keep heading through good quality monitoring of supports and services.
1) We created a video to describe the history of NCI and the impact it has made on the field. The video, starring NCI team members, NASDDDS staff, surveyors and people who have taken the survey, details the policy context in which NCI made its debut, and how the uniqueness of the tool has made it a integral part of states' quality management. Watch it here.
2) Valerie Bradley, President Emerita of HSRI and one of the founders of NCI, wrote a monograph to commemorate the 20th anniversary of NCI. The report details the history of NCI, how it's evolved over the years and how the data are being used. Take a look here.
3) Val also presented at the NASDDDS conference in November, 2018. In the presentation, Val detailed the importance of NCI throughtout the past 20 years, and discussed how some of the data have changed. See the powerpoint here.
What has NCI meant to you? Please let us know at firstname.lastname@example.org
and HAPPY NEW YEAR!
May 26th, 2016 by | No Comments Yet
On May 25, 2016 Valerie Bradley, President of HSRI, presented to a forum of Massachusetts parents and advocates. Val presented on national trends impacting support needs of families, reforms in family support and what NCI family survey data show about the circumstances of families receiving state services.
Val highlighted several trends in the DD field that have an impact on families. These trends include Supported Decision Making, the new HCBS rule, Olmstead and the ADA and Self-Directed Supports options. Val also highlighted the challenges faced by families with aging caregivers and the needs of families with transition-aged youth.
In her discussion of NCI data, Val discussed the demographics, personal characteristics of families who responded to the NCI family surveys (mail out). She also looked at rates of satisfaction with services and the perceived impact of services on the families' lives.
Take a look at the presentation here.