Category: Other (X)
May 26th, 2016 by | No Comments Yet
On May 25, 2016 Valerie Bradley, President of HSRI, presented to a forum of Massachusetts parents and advocates. Val presented on national trends impacting support needs of families, reforms in family support and what NCI family survey data show about the circumstances of families receiving state services.
Val highlighted several trends in the DD field that have an impact on families. These trends include Supported Decision Making, the new HCBS rule, Olmstead and the ADA and Self-Directed Supports options. Val also highlighted the challenges faced by families with aging caregivers and the needs of families with transition-aged youth.
In her discussion of NCI data, Val discussed the demographics, personal characteristics of families who responded to the NCI family surveys (mail out). She also looked at rates of satisfaction with services and the perceived impact of services on the families' lives.
Take a look at the presentation here.
With 'Supported Decision Making' (SDM), people with disabilities and others who may have previously been in guardianship can use a series of relationships, arrangements, and practices to assist in making and communicating autonomous decisions about his/her life. SDM maintains the independence and decision-making capabilities of people with disabilities, is less intrusive than traditional guardianship and promotes self-advocacy.
Check out these videos of Amanda (SDM adopter) and Paige (SDM Advisory Council member). In these videos, they discuss their experiences with SDM.
To learn more about SDM:
In 2015 Bizchut, The Israel Human Rights Center for People with Disabilities, with the support of OSF, produced 4 movie clips about Article 12 to talk about the complex issues of legal capacity and supported decision-making through personal stories that catch the interest of the viewer. Please watch these powerful videos.
Michael Bach: Looking Differently at Disability and Decision Making: https://www.opensocietyfoundations.org/videos/open-society-michael-bach
Jan 26th, 2016 by | No Comments Yet
We recently read this study about racial and ethnic disparities among adults with IDD. This study used data from the 2002-2011 Medical Expenditure Panel Survey and the National Health Interview Survey to look at perceived health, perceived mental health, obesity and diabetes in adults with IDD who lived in community settings. Their analyses were controlled for age, sex, income, urban living status, education and insurance status.
This study found that “Black and Latino adults with intellectual and developmental disabilities were significantly more likely to be in fair or poor health and mental health than White adults with intellectual and developmental disabilities”
In addition, they found that “black and Latino adults with intellectual and developmental disabilities were significantly more likely to report fair or poor health and mental health than those without intellectual and developmental disabilities.”
They also found that Latino adults with IDD were more likely to be obese and have diabetes than Latino adults without IDD.
The study states that “These findings suggest that Black and Latino adults with intellectual and developmental disabilities have markedly worse health status than both their white counterparts with intellectual and developmental disabilities, and nondisabled adults within their racial and ethnic groups.”
National Core Indicators did an investigation of differences by race/ethnicity in the use of preventive care of adults with IDD. Here is a link to a blog post on the topic, and here is a link to an article.
Using 2011-12 NCI data, our research found that, after controlling for demographic and personal characteristics by which individuals differ, the following differences persisted:
Has had dentist visit in past year
- African American, Non-Hispanic respondents are significantly less likely than White, Non-Hispanic respondents to have had a dentist visit in the past year
Has had eye exam in past year
- African American, Non-Hispanic respondents are significantly more likely than White, Non-Hispanic respondents to have had an eye exam in the past year
Has had flu vaccine in past year
- African American, Non-Hispanic respondents are significantly less likely than White, Non-Hispanic respondents to have had a flu vaccine in the past year
Both of these studies indicate that more research is needed into the causes and social determinants of health and preventive care use for individuals of different races and ethnicities with IDD.