NCI data on Guardianship/ConservatorshipJul 14th, 2021
By publicly discussing her experience, Britney Spears has brought national attention to guardianship/conservatorship relationships and the potential for exploitation. NCI is one of few data sources on the guardianship status of adults receiving state DD services.
The decision to place someone under guardianship is most often motivated by a desire to protect the interests of the individual with a disability, but the consequences for that individual may be profound. Research on the negative impacts of guardianship indicates that it can be detrimental to the person’s quality of life, causing feelings of helplessness, hopelessness, and inadequacy. Research also shows that being subject to guardianship, and the subsequent loss of autonomy and self-determination, can result in decreased functioning and can affect physical and mental health.
This 2019 NCI data brief explores the characteristics and outcomes of people with intellectual and developmental disabilities who have full or partial guardianship compared to those without guardianship.