NCI data on Guardianship/Conservatorship
Jul 14th, 2021
By publicly discussing her experience, Britney Spears has brought national attention to guardianship/conservatorship relationships and the potential for exploitation. NCI is one of few data sources on the guardianship status of adults receiving state DD services.
The decision to place someone under guardianship is most often motivated by a desire to protect the interests of the individual with a disability, but the consequences for that individual may be profound. Research on the negative impacts of guardianship indicates that it can be detrimental to the person’s quality of life, causing feelings of helplessness, hopelessness, and inadequacy. Research also shows that being subject to guardianship, and the subsequent loss of autonomy and self-determination, can result in decreased functioning and can affect physical and mental health.
This 2019 NCI data brief explores the characteristics and outcomes of people with intellectual and developmental disabilities who have full or partial guardianship compared to those without guardianship.
NCI-Aging and Disabilities (NCI-AD) Data Spotlight: Alzheimer's and Related Dementias
Jun 30th, 2021
From our friends at NCI-AD*
This Data Spotlight highlights the experiences of respondents to the 2018-19 NCI-AD Adult Consumer Survey who had an Alzheimer's or other dementia diagnosis. Data in this Spotlight include information on the importance of family support, community participation, and satisfaction.
View Alzheimer's and Related Dementias Data Spotlight PDF
View Alzheimer's and Related Dementias Data Spotlight Video
***The National Core Indicators-Aging and Disabilities (NCI-AD®) is an initiative designed to support states’ interest in assessing the performance of their programs and delivery systems in order to improve services for older adults and individuals with physical disabilities. NCI-AD is a collaborative effort between ADvancing States (formerly NASUAD) and the Human Services Research Institute (HSRI). NCI-AD’s primary aim is to collect and maintain valid and reliable data that give states a broad view of how publicly-funded services impact the quality of life and outcomes of service recipients. Go to NCI-AD.org for more info
NCI Data Brief: What Do NCI Data Tell Us About Significant Racial & Ethnic Disparities Across Quality of Life & Health Domains?
Mar 3rd, 2021
Using National Core Indicators® 2018-19 data, this brief describes differences in personal characteristics, demographics, and outcomes of Black respondents to the In-Person Survey when compared to white respondents. We also provide suggestions for public managers, service providers, people with lived experience and other stakeholders regarding how they might use this information to plan for and support equity in service delivery.
Take a look at the full data brief here.
Video: NCI Spotlight on Racial Equity