• 2020-21 NCI-IDD In-Person Survey and Family Survey User Friendly Reports RELEASED

    Jun 26th, 2022

    Check out the 2020-21 National NCI-IDD In-Person Survey and Family Survey User Friendly Reports. These reports, designed together with self-advocates, highlight topic-specific data in an accessible, easy-to-read format. 

    Take a look here 

  • NCI-AD Data Spotlight: Older Adults and Mental Health

    May 28th, 2022


    Resource from our partners at NCI-AD!


    As you may be aware, May is both Older Americans Month and Mental Health Awareness Month. In light of these observances, the NCI-AD project team has put together an NCI-AD Data Spotlight on the impact of mental health on older adults. Please take a few moments to check out the Data Spotlight PDF and Data Spotlight Video (both available at:


    View Older Adults and Mental Health Data Spotlight PDF
    View Older Adults and Mental Health Data Spotlight Video


    This Data Spotlight highlights the experiences of 6,639 people, ages 65 and older, across 16 states who took part in the 2018-19 NCI-AD Adult Consumer Survey.


    If you have any questions, comments, or feedback please feel free to reach out to ( and Steph Giordano (

  • NCI and the ICI Policy Forum: How Much Do Direct Support Professionals Make? Putting Wages in Context

    Apr 13th, 2022

    Low wages are a major factor contributing to the direct support workforce crisis. This webinar discusses the recent Policy Research Brief, which compared wages of direct support professionals (DSPs) to what people earn in other similar professions. It also puts them in context by comparing DSP wages to living wages—the cost of living based on typical expenses that meet minimum standards of living.

    ICI's Julie Bershadsky moderated this forum. The discussants were Dorothy Hiersteiner from HSRI and Mary Lou Bourne from Management Support Solutions.

    The recording of the ICI Policy Forum held on April 6, 2022 and the slides are now available to view and download.