Demographics

Age

Age in years
State N = 494 | NCI N = 17458

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Marital Status

State N = 490 | NCI N = 17222

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Rural/Urban Designation

State N = 497 | NCI N = 17682

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Type of Residence

State N = 497 | NCI N = 17283

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Length of Residence

State N = 496 | NCI N = 17096

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Residence Owned or Controlled by Provider Agency

State N = 284 | NCI N = 10629

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Person Named on Lease

State N = 276 | NCI N = 7241

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Person Owns His/Her Home

State N = 487 | NCI N = 17090

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ID Diagnosis

State N = 493 | NCI N = 17283

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Other Diagnoses: Mood Disorder (e.g., Depression, Mania, Bipolar Disorder, etc.)

State N = 496 | NCI N = 16759

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Other Diagnoses: Anxiety Disorder (e.g., Obsessive Disorders, Panic Disorders, etc.)

State N = 494 | NCI N = 16654

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Other Diagnoses: Behavior Challenges (e.g., Aggression, Self-Injurious Behavior, etc.)

State N = 494 | NCI N = 16653

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Other Diagnoses: Psychotic Disorder (e.g., Schizophrenia, Hallucinations, etc.)

State N = 489 | NCI N = 16558

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Other Diagnoses: Other Mental Illness/Psychiatric Diagnosis

State N = 492 | NCI N = 16486

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Other Diagnoses: Cerebral Palsy

State N = 497 | NCI N = 16632

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Other Diagnoses: Brain Injury

State N = 493 | NCI N = 16526

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Other Diagnoses: Seizure Disorder/Neurological Problem

State N = 494 | NCI N = 16755

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Other Diagnoses: Chemical Dependency

State N = 491 | NCI N = 16557

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Other Diagnoses: Down Syndrome

State N = 494 | NCI N = 16613

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Other Diagnoses: Prader-Willi Syndrome

State N = 494 | NCI N = 16540

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Other diagnoses: Fetal Alcohol Spectrum Disorder

State N = 492 | NCI N = 16497

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Health Conditions: Cardiovascular Disease

State N = 492 | NCI N = 16484

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Health Conditions: Diabetes

State N = 493 | NCI N = 16509

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Health Conditions: Cancer

State N = 493 | NCI N = 16438

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Person is a Parent

State N = 492 | NCI N = 16273

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Health Conditions: High Blood Pressure

State N = 495 | NCI N = 16596

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Health Conditions: High Cholesterol

State N = 494 | NCI N = 16538

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Health Conditions: Dysphasia

State N = 492 | NCI N = 16413

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Health Conditions: Pressure Ulcers

State N = 493 | NCI N = 16372

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Other Diagnoses: Limited or No Vision

State N = 494 | NCI N = 16556

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Other Diagnoses: Hearing Loss

State N = 493 | NCI N = 16416

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Health Conditions: Alzheimer's Disease or Other Dementia

State N = 488 | NCI N = 16274

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Primary Language

State N = 493 | NCI N = 16904

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Mobility

State N = 497 | NCI N = 17304

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Support Needed to Manage Self Injurious Behavior

State N = 495 | NCI N = 17171

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Support Needed to Manage Disruptive Behavior

State N = 496 | NCI N = 17182

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Support Needed to Manage Destructive Behavior

State N = 496 | NCI N = 17165

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Guardianship

State N = 495 | NCI N = 17325

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Relationship of Guardian to Individual

State N = 206 | NCI N = 8975

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Choice and Decision-Making

People make choices about their lives and are actively engaged in planning their services and supports.

Chose Home

Proportion of people who reported they chose or had some input in choosing where they live if not living in the family home
State N = 311 | NCI N = 9514

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Chose Housemates

Proportion of people who reported they chose or had some input in choosing their housemates if not living in the family home
State N = 313 | NCI N = 9676

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Chose Paid Community Job

Proportion of people reported to have a job in the community and who reported they chose or had some input in choosing their job
State N = 47 | NCI N = 2459

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Chose Day Program or Regular Activity

Proportion of people who reported they have a day program or activity and chose or had some input in choosing their day program or activity
State N = 397 | NCI N = 12165

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Chose Staff

Proportion of people who reported they chose or were aware they could request to change their staff
State N = 422 | NCI N = 15386

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Decides Daily Schedule

Proportion of people who reported they choose or help decide their daily schedule
State N = 478 | NCI N = 16730

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Decides How to Spend Free Time

Proportion of people who reported they choose or help decide how to spend free time
State N = 481 | NCI N = 16725

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Chooses How to Spend Money

Proportion of people who reported they chose or help decide what to buy with their spending money
State N = 484 | NCI N = 16608

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Chose Case Manager/Service Coordinator

Proportion of people who reported they chose or were aware they could request to change their case manager/service coordinator
State N = 459 | NCI N = 15910

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Work

People have support to find and maintain community integrated employment.

Paid Community Job

Proportion of people who has a job in the community
State N = 488 | NCI N = 16375

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Paid Community Job Industry

Proportion of people who were reported to have a job in the community in different types of jobs
State N = 50 | NCI N = 2624

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Average Months of Employment at Current Paid Community Job

Average length of employment (months) in current job for people who were reported to have a job in the community
State N = 47 | NCI N = 2308

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Receives Paid Vacation and/or Sick Time at Paid Community Job

Proportion of people who receive paid vacation and/or paid sick time at their paid community job
State N = 38 | NCI N = 2282

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Type of Paid Community Job, Individual

Proportion of people who were reported to have a job in the community by type of employment support
State N = 44 | NCI N = 2463

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Type of Paid Community Job, Group

Proportion of people who were reported to have a job in the community by type of employment support
State N = 49 | NCI N = 2702

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Would Like a Paid Job in the Community

Proportion of people who were reported not to have a job in the community and who reported they would like a job in the community
State N = 208 | NCI N = 6550

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Has Community Employment as a Goal in Service Plan

Proportion of people who has community employment as a goal in their service plan
State N = 476 | NCI N = 16386

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Attends a Day Program or Regular Activity

Proportion of people who reported going to a day program or regular activity
State N = 309 | NCI N = 11619

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Takes Classes, Training or Do Something to Help Get a Job or a Better Job

Proportion of people who take classes, training or do something to help get a job or a better job
State N = 296 | NCI N = 11193

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Volunteers

Proportion of people who reported doing volunteer work
State N = 309 | NCI N = 11434

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Self-Determination

People have authority and are supported to direct and manage their own services.

Uses Self-Directed Supports

Proportion of people who were reported to be using a self-directed supports option
State N = 495 | NCI N = 17234

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Community Inclusion

People have support to participate in everyday community activities.

Went Shopping in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 483 | NCI N = 16755

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Went on Errands in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 484 | NCI N = 16510

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Went Out to Entertainment in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 483 | NCI N = 16688

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Went Out to Eat in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 483 | NCI N = 16705

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Went to a Religious Service or Spiritual Practice in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 481 | NCI N = 16495

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Participates in Community Groups

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 478 | NCI N = 16383

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Went on Vacation in the Past Year

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 477 | NCI N = 16558

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Able to Go Out and Do the Things They Like to Do

Proportion of people who report being able to go out and do the things they like to do
State N = 303 | NCI N = 11407

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Able to Go Out and Do the Things They Like to Do Enough

Proportion of people who report being able to go out and do the things they like to do enough
State N = 281 | NCI N = 10553

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Have Enough Things to Do at Home

Proportion of people who report that they have enough things to do at home
State N = 307 | NCI N = 11514

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Relationships

People have friends and relationships.

Has Friends

Proportion of people who reported they have friends who are not staff or family members
State N = 312 | NCI N = 11581

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Wants More Help to Keep in Touch With Friends

Proportion of people who want more help to communicate with friends
State N = 296 | NCI N = 10958

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Can See Friends

Proportion of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 253 | NCI N = 10374

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Has Other Ways of Communicating With Friends

Proportion of people who reported they had other ways of communicating with friends
State N = 236 | NCI N = 9946

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Can See Family

Proportion of people who reported they have family they see and the support needed to see their family when they want to
State N = 282 | NCI N = 10874

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Feels Lonely

Proportion of people who reported they often feel lonely
State N = 307 | NCI N = 11316

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Can Date

Proportion of people who reported they can go on a date if they want to or can date with some restriction
State N = 213 | NCI N = 9345

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Satisfaction

People are satisfied with the services and supports they receive.

Families/family members with disabilities receive adequate and satisfactory supports.

Likes Home

Proportion of people who reported they like their home
State N = 323 | NCI N = 11823

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Wants to Live Somewhere Else

Proportion of people who reported they would like to live somewhere else
State N = 317 | NCI N = 11492

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Likes Paid Community Job

Proportion of people who were reported to have a job in the community and who reported they like where they work
State N = 48 | NCI N = 2295

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Wants to Work Somewhere Else

Proportion of people who were reported to have a job in the community and who reported they want to work somewhere else
State N = 44 | NCI N = 2242

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Would Like to Go to Day Program or Activity Less Than Goes Now.

Proportion of people who reported they attend a day program or activity and would like to go to their day program or activity less than they go now
State N = 166 | NCI N = 6199

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Service Coordination

Service coordinators are accessible, responsive, and support the person’s participation in service planning.

Met Case Manager/Service Coordinator

Proportion of people who reported they met their service coordinator/case manager
State N = 313 | NCI N = 11389

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Case Manager/Service Coordinator Asks What Person Wants

Proportion of people who reported their service coordinator/case manager asks them what they want
State N = 303 | NCI N = 10576

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Can Contact Case Manager/Service Coordinator When Wants to

Proportion of people who reported they are able to contact your case manager/service coordinator when you want to
State N = 278 | NCI N = 10154

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Person Took Part in the Last Service Planning Meeting

Proportion of people who reported they took part in the last service planning meeting
State N = 286 | NCI N = 9722

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Person Knew What Was Being Talked About at Last Service Plan Meeting

Proportion of people who reported that they understood what was discussed in last service planning meeting
State N = 273 | NCI N = 9172

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The Service Planning Meeting Included the People That the Person Wanted to Be There

Proportion of people who reported that service planning meeting included people the person wanted to be there
State N = 270 | NCI N = 9425

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The Person Was Able to Choose the Services That Were Part of the Service Plan

Proportion of people who reported that they were able to choose the services that were received as part of service plan
State N = 271 | NCI N = 9360

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Staff Come and Leave When They Are Supposed To

Proportion of people who reported support workers come and leave when they are supposed to
State N = 255 | NCI N = 10114

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Access

Publicly-funded services are readily available to individuals who need and qualify for them.

Able to Get Rides for Work or Appointments

Proportion of people who reported they are always able to get rides for work or appointments
State N = 310 | NCI N = 11479

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Able to Get Rides for Recreational Activities

Proportion of people who reported they are always able to get rides for recreational activities
State N = 301 | NCI N = 11387

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Staff Have Right Training to Meet Person's Needs

Proportion of people who reported their staff have adequate training to meet their needs
State N = 299 | NCI N = 12118

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Health

People secure needed health services.

Has a Primary Care Doctor

Proportion of people who were reported to have a primary care doctor
State N = 497 | NCI N = 17076

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Overall Health

Self-reported overall health status
State N = 483 | NCI N = 16781

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Last Physical Exam

Proportion of people who were reported to have had a complete physical exam in the past year
State N = 487 | NCI N = 15882

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Last Dental Exam

Proportion of people who were reported to have had a dental exam in the past year
State N = 457 | NCI N = 14558

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Last Eye Exam or Vision Screening

Proportion of people who were reported to have had an eye exam in the past year
State N = 450 | NCI N = 12964

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Last Hearing Test

Proportion of people who were reported to have had a hearing test in the past five years
State N = 395 | NCI N = 9276

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Last Pap Test (Women)

Proportion of women who were reported to have had a Pap test in the past three years
State N = 158 | NCI N = 4614

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Last Mammogram (Women 40 and Over)

Proportion of women over 40 who were reported to have had a mammogram test in the past two years
State N = 87 | NCI N = 2597

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Last Colorectal Cancer Screening (Age 50 and Over)

Proportion of people 50 or over who were reported to have had a colorectal cancer screening in the past year
State N = 134 | NCI N = 3019

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Had a Flu Vaccine (in the Past Year)

Proportion of people who were reported to have had a flu vaccine in the past year
State N = 403 | NCI N = 11830

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Medications

Medications are managed effectively and appropriately.

Person Takes at Least One Medication for Mood, Anxiety, or Psychotic Disorder

Proportion of people who took medication for at least one of the following: mood disorders, anxiety, psychotic disorder
State N = 483 | NCI N = 16314

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Number of Medications Taken for Mood Disorders, Anxiety and/or Psychotic Disorders

Number of meds taken for at least one of the following: mood disorders, anxiety, psychotic disorders
State N = 228 | NCI N = 7749

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Takes at Least One Medication for Behavior Challenges

Proportion of people who were reported to take medication for behavior challenges
State N = 476 | NCI N = 16004

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Number of Medications Taken for Behavioral Challenges

Number of meds taken for behavior challenges
State N = 145 | NCI N = 3767

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Person Takes at Least One Medication for Mood, Behavior, Anxiety, or Psychotic Disorder

Proportion of people who took at least one medication for mood, anxiety, psychotic, behavior and/or other
State N = 474 | NCI N = 16159

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Has a Behavior Plan

Proportion of people reported to have a behavior plan
State N = 489 | NCI N = 15979

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Has a Behavior Plan (If Taking Medications for Behavior Challenges)

Proportion of people who take meds for behavior challenges who have a behavior plan
State N = 151 | NCI N = 3827

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Wellness

People are supported to maintain healthy habits.

Engages in Physical Activity

Proportion of people who were reported to engage in regular physical activity (at least 30 minutes 3 times a week)
State N = 483 | NCI N = 16812

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BMI (Body Mass Index)

Proportion of people in each BMI category
State N = 476 | NCI N = 14546

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Use Nicotine or Tobacco Products

Proportion of people who were reported to use nicotine or tobacco products
State N = 488 | NCI N = 16087

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Respect/Rights

People receive the same respect and protections as others in the community.

Has a Key to the Home

Proportion of people who report having a key to their home
State N = 483 | NCI N = 16238

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People Always Ask Before Entering Home

Proportion of people who reported people always let them know before they come into their home
State N = 306 | NCI N = 11437

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Can Lock Bedroom If Wanted

Proportion of people who report they can lock their bedroom
State N = 464 | NCI N = 15641

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People Always Ask Before Entering Bedroom

Proportion of people who reported people always let them know before they come into their bedroom
State N = 301 | NCI N = 11103

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Mail or Email Is Read Without Permission

Proportion of people who reported mail or email being read by others without permission (lower is better)
State N = 265 | NCI N = 10507

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Can Use Phone and Internet Without Restrictions

Proportion of people who reported they can use phone and internet without restriction
State N = 270 | NCI N = 10835

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Can Be Alone at Home With Visitors

Proportion of people who reported they could be alone at home with visitors
State N = 277 | NCI N = 10468

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There Are Rules About Having Friends or Visitors in the Home

Proportion of people who report that there are rules regarding having friends or visitors in their home (lower is better)
State N = 273 | NCI N = 10013

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Has a Place to Be Alone at Home

Proportion of people who reported having a place to be alone at home
State N = 300 | NCI N = 11583

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Staff Are Respectful

Proportion of people who reported their staff treat them with respect
State N = 265 | NCI N = 10447

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Participated in a Self-Advocacy Meeting, Conference, or Event

Proportion of people who reported they have attended a self advocacy event, or chose not to
State N = 370 | NCI N = 14387

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Has Voted

Proportion of people who report having ever voted in a local, state or federal election
State N = 461 | NCI N = 16047

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Safety

People are safe from abuse, neglect, and injury.

There Are Places Where the Person Feels Afraid

Proportion of people who report that there is at least one place where he/she feels afraid.
State N = 290 | NCI N = 10922

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If the Person Feels Afraid, He/She Has Someone to Talk To

Proportion of people who reported they have someone to talk to if they feel afraid
State N = 311 | NCI N = 11358

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