State of PA

Pennsylvania

State Report: 2017-18

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The NCI Adult Consumer Survey is an interview conducted with a person who is receiving services from the state; it is used to gather data on approximately 60 consumer outcomes, and it is regularly refined and tested to ensure that it is valid and reliable. Interviewers meet with individuals to ask questions about where they live and work, the kinds of choices they make, the activities they participate in within their communities, their relationships with friends and family, and their health and well-being.

Demographics

Age

Age in years
State N = 696 | NCI N = 25562

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Age Categories

State N = 708 | NCI N = 25671

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Gender

State N = 690 | NCI N = 25568

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Marital Status

State N = 663 | NCI N = 25459

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Race/ethnicity

State N = 688 | NCI N = 25553

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Rural/urban Designation

State N = 644 | NCI N = 24168

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Type of Residence

State N = 660 | NCI N = 25488

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Type of Residence - 5 Categories

State N = 634 | NCI N = 24970

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Length of Residence

State N = 660 | NCI N = 25303

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Residence Owned or Controlled by Provider Agency

State N = 649 | NCI N = 24901

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Person Named on Lease

State N = 656 | NCI N = 22404

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Person Owns His/her Home

State N = 656 | NCI N = 23992

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ID Diagnosis

State N = 660 | NCI N = 25465

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Level of ID

State N = 649 | NCI N = 22674

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Other Diagnoses - Mood Disorder

State N = 642 | NCI N = 25179

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Other Diagnoses - Anxiety Disorder

State N = 643 | NCI N = 25147

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Other Diagnoses - Behavior Challenges

State N = 646 | NCI N = 25129

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Other Diagnoses - Psychotic Disorder

State N = 644 | NCI N = 25054

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Other Diagnoses - Other Mental Illness/psychiatric Diagnosis

State N = 638 | NCI N = 25039

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Other Diagnoses - Autism Spectrum Disorder

State N = 646 | NCI N = 25187

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Other Diagnoses - Cerebral Palsy

State N = 643 | NCI N = 25184

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Other Diagnoses - Brain Injury

State N = 641 | NCI N = 25026

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Other Diagnoses - Seizure Disorder/neurological Problem

State N = 642 | NCI N = 25198

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Other Diagnoses - Chemical Dependency

State N = 643 | NCI N = 25156

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Other Diagnoses - Down Syndrome

State N = 645 | NCI N = 25107

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Other Diagnoses - Prader-Willi Syndrome

State N = 642 | NCI N = 25083

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Other Diagnoses - Fetal Alcohol Spectrum Disorder

State N = 638 | NCI N = 25036

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Other Diagnoses - Limited or No Vision

State N = 643 | NCI N = 24735

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Other Diagnoses - Hearing Loss

State N = 640 | NCI N = 24620

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Other Diagnoses - Other Disabilities Not Listed

State N = 597 | NCI N = 24012

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Other Diagnoses - No Other Disabilities

State N = 649 | NCI N = 25315

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Health Conditions - Cardiovascular Disease

State N = 632 | NCI N = 25133

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Health Conditions - Diabetes

State N = 639 | NCI N = 25161

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Health Conditions - Cancer

State N = 637 | NCI N = 25100

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Health Conditions - High Blood Pressure

State N = 638 | NCI N = 24720

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Health Conditions - High Cholesterol

State N = 632 | NCI N = 24702

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Health Conditions - Dysphasia

State N = 632 | NCI N = 24684

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Health Conditions - Pressure Ulcers

State N = 634 | NCI N = 24672

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Health Conditions - Alzheimer's Disease or Other Dementia

State N = 630 | NCI N = 25055

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Health Conditions - Oral Health or Dental Problems

State N = 632 | NCI N = 23662

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Health Conditions - Sleep Apnea

State N = 629 | NCI N = 24561

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Health Conditions - Other Health Conditions

State N = 589 | NCI N = 23296

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Preferred Means of Communication

State N = 663 | NCI N = 25455

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Primary Language

State N = 653 | NCI N = 25357

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Mobility

State N = 667 | NCI N = 25471

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Support Needed to Manage Self-Injurious Behavior

State N = 648 | NCI N = 25399

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Support Needed to Manage Disruptive Behavior

State N = 647 | NCI N = 24427

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Support Needed to Manage Destructive Behavior

State N = 647 | NCI N = 24378

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Guardianship

State N = 672 | NCI N = 25499

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Guardian's relationship to person

State N = 156 | NCI N = 10617

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Choice and Decision-Making

People make choices about their lives and are actively engaged in planning their services and supports.

Chose Home

Of people who do not live in the family home, the percentage of people who reported having input in choosing where they live
State N = 303 | NCI N = 13245

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Chose Housemates

Of people who do not live in the family home, the percentage of people who reported having input in choosing housemates
State N = 297 | NCI N = 13016

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Chose Paid Community Job

Of those with a paid community job, the percentage of people who report having input in choosing paid community job
State N = 106 | NCI N = 3791

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Chose Day Program or Regular Activity

The percentage of people who report having input in choosing day activities (in addition to or instead of paid community job)
State N = 257 | NCI N = 11831

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Chose Staff

The percentage of people who report having choice in their staff
State N = 551 | NCI N = 20614

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Decides Daily Schedule

The percentage of people who decide or have input in deciding daily schedule
State N = 661 | NCI N = 24029

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Decides How to Spend Free Time

The percentage of people who report having enough choice about what to do in their free time
State N = 670 | NCI N = 24062

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Chooses How to Spend Money

The percentage of people who report having input in how they spend their money 
State N = 657 | NCI N = 23918

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Chose Case Manager/service Coordinator

Percentage of people who reported they could change their case manager/service coordinator
State N = 526 | NCI N = 21391

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Work

People have support to find and maintain community integrated employment.

Paid Community Job

The percentage of those who are reported to have a paid job in the community; individual, group and/or in a business that primarily hires people with disabilities
State N = 587 | NCI N = 23232

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Paid Individual Community Job

Percentage of people who have a paid job in the community: Individual jobs
State N = 93 | NCI N = 3887

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Paid Group Community Job

Percentage of people who have a paid job in the community: Group jobs
State N = 98 | NCI N = 4150

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Hours - Individual Job With Publicly Funded Supports

Average number of bi-weekly hours, individual jobs with publicly funded supports
State N = 32 | NCI N = 1165

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Hours - Individual Job Without Publicly Funded Supports

Average number of bi-weekly hours, individual job without publicly funded supports
State N = 23 | NCI N = 1115

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Average Months of Employment at Current Paid Community Job

Average length of employment (months) in current job for people who were reported to have a job in the community
State N = 62 | NCI N = 3696

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Receives Paid Vacation And/or Sick Time at Paid Community Job

Of people who have a paid job in the community, the percentage of people who are reported to receive vacation and/or sick time benefits
State N = 66 | NCI N = 3402

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Job Industry - Food Preparation

The percentage of people who were reported to have a job in the community in different types of jobs: Food preparation and food service
State N = 96 | NCI N = 4106

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Job Industry - Cleaning

The percentage of people who were reported to have a job in the community in different types of jobs: Building and grounds cleaning or maintenance
State N = 96 | NCI N = 4106

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Job Industry - Personal Care Provider

The percentage of people who were reported to have a job in the community in different types of jobs: Personal care provider+D54
State N = 96 | NCI N = 4106

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Job Industry - Retail

The percentage of people who were reported to have a job in the community in different types of jobs: Retail job such as sales clerk or stock person
State N = 96 | NCI N = 4106

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Job Industry - General Office and Admin Support

The percentage of people who were reported to have a job in the community in different types of jobs: General office and administrative support
State N = 96 | NCI N = 4106

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Job Industry - Farming, Fishing, Forestry

The percentage of people who were reported to have a job in the community in different types of jobs: Farming, fishing, forestry worker
State N = 96 | NCI N = 4106

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Job Industry - Construction or Repair

The percentage of people who were reported to have a job in the community in different types of jobs: Construction or repair occupation
State N = 96 | NCI N = 4106

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Job Industry - Assembly, Manufacturing

The percentage of people who were reported to have a job in the community in different types of jobs: Assembly, manufacturing or packaging
State N = 96 | NCI N = 4106

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Job Industry - Materials Handling, Mail Distribution

The percentage of people who were reported to have a job in the community in different types of jobs: Materials handling, mail distrinution
State N = 96 | NCI N = 4106

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Job Industry - Management, Business, Financial Operations

The percentage of people who were reported to have a job in the community in different types of jobs: Management, business or financial operations
State N = 96 | NCI N = 4106

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Job Industry - Professional or Technical Occupation

The percentage of people who were reported to have a job in the community in different types of jobs: Professional or technical occupation
State N = 96 | NCI N = 4106

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Job Industry - Other

The percentage of people who were reported to have a job in the community in different types of jobs: Other
State N = 96 | NCI N = 4106

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Would Like a Paid Job in the Community

The percentage of people who are reported to not have a paid job in the community but report wanting a paid job in the community
State N = 221 | NCI N = 10486

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Has Community Employment as a Goal in Service Plan

The percentage of people who are reported to have a goal of community employment in their individualized service plan
State N = 616 | NCI N = 23118

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Takes Classes, Training or Do Something to Help Get a Job or a Better Job

The percentage of people who report taking part in activities to gain skills to expand job opportunities
State N = 417 | NCI N = 16666

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Attends a Day Program or Regular Activity

The percentage of people who report participating in organized day activities (such as day program or sheltered workshop)
State N = 440 | NCI N = 17256

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Volunteers

The percentage of people who report volunteering
State N = 425 | NCI N = 16815

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Self-Determination

People have authority and are supported to direct and manage their own services.

Uses Self-Directed Supports Option

The percentage of people reported to be using a self-directed supports option
State N = 627 | NCI N = 14190

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Participates in Budget Decisions

The percentage of people reported to be using a self-directed supports option who report that they participate in decisions about how service budget is used
State N = 33 | NCI N = 1656

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Who Makes Budget Decisions

The percentage of people self-directing who reported they make decisions about how budget for services is used
State N = 32 | NCI N = 1689

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Community Inclusion

People have support to participate in everyday community activities.

Went Shopping in the Past Month

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 656 | NCI N = 24913

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Went on Errands in the Past Month

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 652 | NCI N = 24681

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Went Out to Entertainment in the Past Month

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 652 | NCI N = 24914

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Went Out to Eat in the Past Month

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 660 | NCI N = 24949

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Went to a Religious Service or Spiritual Practice in the Past Month

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 651 | NCI N = 24712

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Participates in Community Groups

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 646 | NCI N = 24870

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Went on Vacation in the Past Year

The percentage of people who regularly participate in everyday integrated activities in their communities.
State N = 651 | NCI N = 24856

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Able to Go Out and Do the Things They Like to Do

Percentage of people who report being able to go out and do the things they like to do
State N = 431 | NCI N = 16804

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Able to Go Out and Do the Things They Like to Do Enough

Percentage of people who report being able to go out and do the things they like to do enough
State N = 400 | NCI N = 15705

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Has Enough Things to Do at Home

Percentage of people who report that they have enough things to do at home
State N = 434 | NCI N = 16965

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Relationships

People have friends and relationships.

Has Friends

The percentage of people who report having friendships with people other than staff or family members
State N = 435 | NCI N = 17085

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Has a Best Friend

The percentage of people who report having a best friend, or someone they are close to
State N = 404 | NCI N = 16412

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Wants More Help to Keep in Touch With Friends

The percentage of people who report that they would like help to make or keep in contact with friends
State N = 395 | NCI N = 16282

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Can See Friends

The percentage of people who report being able to see and/or communicate with their friends when they want
State N = 371 | NCI N = 14704

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Reasons Cannot See Friends - Lack of Transportation

Percentage of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 33 | NCI N = 2838

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Reasons Cannot See Friends - Lack of Support Staff

Percentage of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 33 | NCI N = 2838

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Reasons Cannot See Friends - Rules or Restrictions About Seeing Friends

Percentage of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 33 | NCI N = 2838

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Reasons Cannot See Friends - Money/cost of Going Out

Percentage of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 33 | NCI N = 2838

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Reasons Cannot See Friends - Difficulty Finding a Time to Get Together

Percentage of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 33 | NCI N = 2838

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Reasons Cannot See Friends - Other

Percentage of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 33 | NCI N = 2838

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Can See Family

The percentage of people who report being able to see and/or communicate with their families when they want
State N = 171 | NCI N = 9459

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Has Other Ways of Communicating With Friends

The percentage of people who report that they have ways to maintain contact with friends when they cannot see them in person
State N = 359 | NCI N = 14607

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Feels Lonely

The percentage of people who report often feeling lonely
State N = 419 | NCI N = 16609

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Can Date

The percentage of people who report being able to go on a date if they want to or report being married and/or living with partner
State N = 342 | NCI N = 13479

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Satisfaction

People are satisfied with the services and supports they receive.

Families/family members with disabilities receive adequate and satisfactory supports.

Likes Home

The percentage of people who report liking where they live
State N = 449 | NCI N = 17477

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Wants to Live Somewhere Else

The percentage of people who report that they would like to live somewhere else
State N = 434 | NCI N = 16904

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Likes Paid Community Job

The percentage of people reported to have a paid job in the community who report that they are satisfied with their job
State N = 73 | NCI N = 3725

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Wants to Work Somewhere Else

The percentage of people reported to have a paid job in the community who report that they would like to work somewhere else
State N = 68 | NCI N = 3660

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Would Like to Go to Day Program or Activity Less Than Goes Now

The percentage of people who report attending a day program or workshop and are satisfied with the amount of time spent there.
State N = 209 | NCI N = 9224

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Services and Supports Are Helping to Live a Good Life

Percentage of people who reported that their services and supports are helping them to live a good life
State N = 409 | NCI N = 16769

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Service Coordination

Service coordinators are accessible, responsive, and support the person’s participation in service planning.

Met Case Manager/service Coordinator

Percentage of people who reported they met their service coordinator/case manager
State N = 419 | NCI N = 16705

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Case Manager/service Coordinator Asks What Person Wants

Percentage of people who reported their service coordinator/case manager asks them what they want
State N = 398 | NCI N = 15849

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Can Contact Case Manager/service Coordinator When Wants to

Percentage of people who reported they are able to contact your case manager/service coordinator when you want to
State N = 329 | NCI N = 15374

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Person Took Part in the Last Service Planning Meeting

Percentage of people who reported they took part in the last service planning meeting
State N = 357 | NCI N = 14558

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Person Knew What Was Being Talked About at Last Service Plan Meeting

Percentage of people who reported that they understood what was discussed in last service planning meeting
State N = 324 | NCI N = 13651

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The Service Planning Meeting Included the People That the Person Wanted to Be There

Percentage of people who reported that service planning meeting included people the person wanted to be there
State N = 338 | NCI N = 14079

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The Person Was Able to Choose the Services That Were Part of the Service Plan

The percentage of people who report having been able to choose what services were included in their service plan
State N = 324 | NCI N = 13905

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Staff Come and Leave When They Are Supposed To

Percentage of people who reported support workers come and leave when they are supposed to
State N = 319 | NCI N = 14098

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Access

Publicly-funded services are readily available to individuals who need and qualify for them.

Able to Get Rides for Work or Appointments

Percentage of people who reported they are always able to get rides for work or appointments
State N = 434 | NCI N = 16958

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Able to Get Rides for Recreational Activities

The percentage of people who report that they have a way to get places they need to go
State N = 427 | NCI N = 16784

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Staff Have Right Training to Meet Person's Needs

The percentage of people who report that they have a way to get places when they want to do something outside of the home
State N = 405 | NCI N = 16619

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Additional Services Needed - Service Coordination/case Management

The percentage of people who reported needing additional services-Service coordination/case management
State N = 647 | NCI N = 24607

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Additional Services Needed - Respite/family Support

The percentage of people who reported needing additional services-Respite/family support
State N = 647 | NCI N = 24607

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Additional Services Needed - Transportation

The percentage of people who reported needing additional services-Transportation
State N = 647 | NCI N = 24607

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Additional Services Needed - Assistance Finding, Maintaining or Changing Jobs

The percentage of people who reported needing additional services-Assistance finding, maintaining or changing jobs
State N = 647 | NCI N = 24607

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Additional Services Needed - Day Services Other Than Employment

The percentage of people who reported needing additional services-Day services other than employment
State N = 647 | NCI N = 24607

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Additional Services Needed - Education or Training

The percentage of people who reported needing additional services-Education or training
State N = 647 | NCI N = 24607

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Additional Services Needed - Health Care Coordination

The percentage of people who reported needing additional services-Health care coordination
State N = 647 | NCI N = 24607

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Additional Services Needed - Dental Care Coordination

The percentage of people who reported needing additional services-Dental care coordination
State N = 647 | NCI N = 24607

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Additional Services Needed - Assistance Finding, Maintaining or Changing Housing

The percentage of people who reported needing additional services-Assistance finding, maintaining or changing housing
State N = 647 | NCI N = 24607

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Additional Services Needed - Residential Support Services

The percentage of people who reported needing additional services-Residential support services
State N = 647 | NCI N = 24607

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Additional Services Needed - Social/relationship Issues, Meeting People

The percentage of people who reported needing additional services-Social/relationship issues, meeting people
State N = 647 | NCI N = 24607

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Additional Services Needed - Communication Technology

The percentage of people who reported needing additional services-Communication technology
State N = 647 | NCI N = 24607

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Additional Services Needed - Environmental Adaptations

The percentage of people who reported needing additional services-Environmental adaptations
State N = 647 | NCI N = 24607

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Additional Services Needed - Benefits/insurance Info

The percentage of people who reported needing additional services-Benefits/insurance info
State N = 647 | NCI N = 24607

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Additional Services Needed - Other

The percentage of people who reported needing additional services-Other
State N = 647 | NCI N = 24607

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Health

People secure needed health services.

Has a Primary Care Doctor

The percentage of people who are reported to have a primary care doctor or practitioner
State N = 647 | NCI N = 25105

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Overall Health

Self-reported overall health status
State N = 663 | NCI N = 25086

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Last Physical Exam

The percentage of people who are reported have had a complete annual physical exam in the past year
State N = 618 | NCI N = 24077

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Last Dental Exam

The percentage of people who are reported to have had a routine dental exam in the past year
State N = 564 | NCI N = 22838

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Last Eye Exam or Vision Screening

The percentage of people who are reported to have had an eye exam/vision screening within the past year
State N = 510 | NCI N = 20924

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Last Hearing Test

The percentage of people who are reported to have had a hearing test within the past 5 years
State N = 325 | NCI N = 16546

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Last Pap Test

The percentage of women over 21 who are reported to have had a Pap test screening at the recommended interval
State N = 138 | NCI N = 7260

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Last Mammogram

The percentage of women aged 40 and older who are reported to have had a mammogram within the past 2 years
State N = 102 | NCI N = 4120

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Colorectal Cancer Screening - Colonoscopy within past 10 years

The percentage of people ages 50 and over that are reported to have received colonoscopy within the past 10 years
State N = 246 | NCI N = 8052

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Colorectal Cancer Screening - Flexible sigmoidoscopy within past 5 years

The percentage of people ages 50 and over that are reported to have received flexible sigmoidoscopy within the past 5 years
State N = 246 | NCI N = 8052

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Colorectal Cancer Screening - FOBT or FIT within past year

The percentage of people ages 50 and over that are reported to have received Fecal Occult Blood Test (FOBT) or Fecal Immunochemical Test (FIT) in the past year
State N = 246 | NCI N = 8052

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Colorectal Cancer Screening - Did not have screening past 10 years

The percentage of people ages 50 and over that are reported to have not had screening for colorectal cancer within the past 10 years
State N = 246 | NCI N = 8052

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Had a Flu Vaccine in the Past Year

The percentage of people who are reported to have had a flu vaccination within the past 12 months
State N = 319 | NCI N = 19938

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Medications

Medications are managed effectively and appropriately.

Takes at Least One Medication for Mood, Anxiety, Psychotic Disorder And/or Behavioral Challenges

State N = 619 | NCI N = 23803

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Takes Medication for Mood, Anxiety, And/or Psychotic Disorders

The percentage of people reported to be taking medications for mood, anxiety, and/or psychotic disorders
State N = 621 | NCI N = 23820

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Takes at Least One Medication for Behavior Challenges

The percentage of people reported to be taking medications for behavior challenges
State N = 622 | NCI N = 23753

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Number of Medications Taken for Mood Disorders, Anxiety And/or Psychotic Disorders

Number of medicationss taken for at least one of the following: mood disorders, anxiety, psychotic disorders
State N = 297 | NCI N = 10259

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Number of Medications Taken for Behavioral Challenges

Number of medications taken for behavior challenges
State N = 105 | NCI N = 5040

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Has a Behavior Plan

Percentage of people reported to have a behavior plan
State N = 640 | NCI N = 24325

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Has a Behavior Plan If Taking Medications for Behavior Challenges

The percentage of people who are reported to take medications for behavior challenges and are reported to have a behavior plan
State N = 107 | NCI N = 5170

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Wellness

People are supported to maintain healthy habits.

Moderate Physical Activity

The percentage of people who report engaging in regular moderate physical activity (at least once per week for 10 minutes or more at a time)
State N = 660 | NCI N = 24940

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Strength Exercises

The percentage of people who report engaging in regular physical activity that makes the muscles in arms, legs, back, and/or chest work hard
State N = 657 | NCI N = 24837

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Bmi/body Mass Index

Percentage of people in each BMI category
State N = 329 | NCI N = 22787

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Use Nicotine or Tobacco Products

The percentage of people who were reported to use nicotine or tobacco products
State N = 615 | NCI N = 24788

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Respect/Rights

People receive the same respect and protections as others in the community.

Has a Key to the Home

Percentage of people who report having a key to their home
State N = 647 | NCI N = 24893

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People Always Ask Before Entering Home

The percentage of people who report that others (who do not live in the home) let them know when entering home
State N = 430 | NCI N = 16772

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Can Lock Bedroom If Wanted

Percentage of people who report they can lock their bedroom
State N = 594 | NCI N = 23416

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People Always Ask Before Entering Bedroom

The percentage of people who report that others let them know when entering their bedroom
State N = 408 | NCI N = 16326

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Mail or Email Is Read Without Permission

The percentage of people who reported mail or email being read by others without permission
State N = 396 | NCI N = 15336

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Can Use Phone and Internet Without Restrictions

The percentage of people who report that they can use phone/internet whenever they want
State N = 386 | NCI N = 15988

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Can Be Alone at Home With Visitors

The percentage of people who reported they could be alone at home with friends or visitors
State N = 380 | NCI N = 15210

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There Are Rules About Having Friends or Visitors in the Home

The percentage of people who report that there are rules about having friends or visitors at home
State N = 362 | NCI N = 14628

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Has a Place to Be Alone at Home

Percentage of people who reported having a place to be alone at home
State N = 438 | NCI N = 17042

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Staff Are Respectful

Percentage of people who reported their staff treat them with respect
State N = 368 | NCI N = 14773

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Participated in a Self-Advocacy Meeting, Conference, or Event

The percentage of people who report having participated in a self-advocacy group meeting, conference, or event, or were given the opportunity to participate but chose not to
State N = 500 | NCI N = 21509

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Has Voted

The percentage of people who report having voted in a local, federal or state election or were given opportunity to vote or register to vote and chose not to
State N = 646 | NCI N = 24269

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Safety

People are safe from abuse, neglect, and injury.

There Are Places Where the Person Feels Afraid

The percentage of people who report that they feel afraid in their home, neighborhood, transport, workplace, day program/ at other daily activity and/or other places
State N = 409 | NCI N = 16475

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If the Person Feels Afraid, He/she Has Someone to Talk To

The percentage of people who have someone to go to for help when they feel afraid
State N = 412 | NCI N = 16646

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