Demographics

Age

State N = 327 | NCI N = 25772

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Guardianship

State N = 327 | NCI N = 25458

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Health Conditions: Dysphasia

State N = 326 | NCI N = 23819

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Health Conditions: Alzheimer's Disease or other dementia

State N = 325 | NCI N = 23739

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Health Conditions: Cancer

State N = 326 | NCI N = 23817

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Health Conditions: Cardiovascular Disease

State N = 327 | NCI N = 23871

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Health Conditions: Diabetes

State N = 326 | NCI N = 23936

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Health Conditions: Hearing Loss

State N = 327 | NCI N = 23590

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Health Conditions: High Blood Pressure

State N = 326 | NCI N = 24012

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Health Conditions: High Cholesterol

State N = 326 | NCI N = 23947

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Health Conditions: Limited or no vision

State N = 327 | NCI N = 23940

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Health Conditions: Other

State N = 325 | NCI N = 23450

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Health Conditions: Pressure Ulcers

State N = 327 | NCI N = 23758

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Mobility

State N = 327 | NCI N = 25659

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Other Diagnoses: Anxiety disorder (e.g., obsessive disorders, panic disorders, etc.)

State N = 326 | NCI N = 24803

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Other Diagnoses: Behavior challenges (e.g., aggression, self-injurious behavior, etc.)

State N = 325 | NCI N = 24840

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Other Diagnoses: Brain Injury

State N = 326 | NCI N = 24575

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Other Diagnoses: Cerebral Palsy

State N = 326 | NCI N = 24789

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Other Diagnoses: Chemical Dependency

State N = 327 | NCI N = 24618

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Other Diagnoses: Down Syndrome

State N = 326 | NCI N = 24682

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Other Diagnoses: Mood disorder (e.g., depression, mania, bipolar disorder, etc.)

State N = 327 | NCI N = 24959

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Other Diagnoses: No other disabilities other than ID

State N = 125 | NCI N = 7008

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Other Diagnoses: Other disabilities not listed

State N = 325 | NCI N = 24138

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Other Diagnoses: Other Mental Illness/Psychiatric Diagnosis

State N = 325 | NCI N = 24553

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Other Diagnoses: Prader-Willi Syndrome

State N = 326 | NCI N = 24534

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Other Diagnoses: Psychotic disorder (e.g., schizophrenia, hallucinations, etc.)

State N = 327 | NCI N = 24755

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Other Diagnoses: Seizure Disorder/Neurological Problem

State N = 326 | NCI N = 24945

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Overall Health

State N = 327 | NCI N = 25393

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Primary Language

State N = 323 | NCI N = 25404

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Support Needed to Manage Destructive Behavior

State N = 327 | NCI N = 25253

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Support Needed to Manage Disruptive Behavior

State N = 327 | NCI N = 25301

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Support Needed to Manage Self Injurious Behavior

State N = 327 | NCI N = 25320

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Type of Residence

State N = 327 | NCI N = 17234

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Who Owns or Leases the Home in Which the Person Lives

State N = 327 | NCI N = 25636

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Health

People secure needed health services.

Had a Flu Vaccine (in the Past Year)

Proportion of people who were reported to have had a flu vaccine in the past year
State N = 248 | NCI N = 20880

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Has a Primary Care Doctor

Proportion of people who were reported to have a primary care doctor
State N = 326 | NCI N = 25359

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Has Ever Been Vaccinated for Pneumonia

Proportion of people who were reported to have had a pneumonia vaccine
State N = 173 | NCI N = 17439

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Last Colorectal Cancer Screening (Age 50 and Over)

Proportion of people 50 or over who were reported to have had a colorectal cancer screening in the past year
State N = 75 | NCI N = 4855

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Last Dental Exam

Proportion of people who were reported to have had a dental exam in the past year
State N = 286 | NCI N = 22929

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Last Eye Exam or Vision Screening

Proportion of people who were reported to have had an eye exam in the past year
State N = 260 | NCI N = 21312

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Last Hearing Test

Proportion of people who were reported to have had a hearing test in the past five years
State N = 176 | NCI N = 17693

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Last Mammogram (Women 40 and Over)

Proportion of women over 40 who were reported to have had a mammogram test in the past two years
State N = 62 | NCI N = 4329

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Last Pap Test (women)

Proportion of women who were reported to have had a Pap test in the past three years
State N = 108 | NCI N = 8012

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Last Physical Exam

Proportion of people who were reported to have had a complete physical exam in the past year
State N = 317 | NCI N = 24142

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Overall Health

Proportion of people who were reported to be in poor health
State N = 327 | NCI N = 24946

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Medications

Medications are managed effectively and appropriately.

Number of Medications Taken for Behavioral Challenges

Number of meds taken for behavior challenges
State N = 60 | NCI N = 5669

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Number of Medications Taken For Mood Disorders, Anxiety and/or Psychotic Disorders

Number of meds taken for at least one of the following: mood disorders, anxiety, psychotic disorders
State N = 185 | NCI N = 10042

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Takes at Least One Medication for Behavior Challenges

Proportion of people who were reported to take medication for behavior challenges**
State N = 320 | NCI N = 24147

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Takes At Least One Medication for Mood Disorders, Anxiety, and/or Psychotic Disorders

Proportion of people who were reported to take medication for at least one of the following: mood disorders, anxiety, psychotic disorders**
State N = 325 | NCI N = 24159

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Respect/Rights

People receive the same respect and protections as others in the community.

Can Be Alone at Home With Visitors or Friends

Proportion of people who reported they could be alone at home with visitors
State N = 264 | NCI N = 21924

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Can Use Phone and Internet Without Restrictions

Proportion of people who reported they can use phone and internet without restriction
State N = 261 | NCI N = 19343

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Has Enough Privacy at Home

Proportion of people who reported they have enough privacy at home
State N = 235 | NCI N = 15170

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Mail or Email Is Not Read by Others Without Permission

Proportion of people who reported people never read their mail without permission
State N = 297 | NCI N = 21135

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Participated in a Self-Advocacy Meeting, Conference, or Event

Proportion of people who reported they have attended a self advocacy event, or chose not to
State N = 313 | NCI N = 21014

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People Let This Person Know Before Entering Their Bedroom

Proportion of people who reported people always knock before entering bedroom
State N = 217 | NCI N = 15362

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People Let This Person Know Before Entering Their Home

Proportion of people who reported people always knock before entering home
State N = 259 | NCI N = 15878

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Staff Treats With Respect

Proportion of people who reported their staff treat them with respect
State N = 224 | NCI N = 14193

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Safety

People are safe from abuse, neglect, and injury.

Ever Feel Afraid or Scared at Home

Proportion of people who reported they never feel scared or afraid in their home
State N = 260 | NCI N = 16161

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Ever Feel Afraid or Scared at Work, Day Program, or Regular Activity

Proportion of people who reported they never feel scared or afraid at their work or day program/regular activity
State N = 234 | NCI N = 12616

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Ever Feel Afraid or Scared in Neighborhood

Proportion of people who reported they never feel scared or afraid in their neighborhood
State N = 252 | NCI N = 15936

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Someone to Go to for Help If Afraid

Proportion of people who reported they have someone to go to for help if they feel scared
State N = 259 | NCI N = 15878

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Wellness

People are supported to maintain healthy habits.

BMI (Body Mass Index)

Proportion of people in each BMI category
State N = 323 | NCI N = 23378

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Chews or Smokes Tobacco

Proportion of people who were reported to chew or smoke tobacco
State N = 320 | NCI N = 24846

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Engages in Regular, Moderate Physical Activity

Proportion of people who were reported to engage in regular physical activity (at least 30 minutes 3 times a week)
State N = 325 | NCI N = 25293

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Choice and Decision-Making

People make choices about their lives and are actively engaged in planning their services and supports.

Chooses How to Spend Money

Proportion of people who reported they chose or help decide what to buy with their spending money
State N = 325 | NCI N = 24993

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Chose Case Manager/Service Coordinator

Proportion of people who reported they chose or were aware they could request to change their case manager/service coordinator
State N = 304 | NCI N = 24022

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Chose Day Program or Regular Activity

Proportion of people who reported they have a day program or activity and chose or had some input in choosing their day program or activity
State N = 261 | NCI N = 18674

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Chose Home

Proportion of people who reported they chose or had some input in choosing where they live if not living in the family home
State N = 171 | NCI N = 7572

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Chose Paid Community Job

Proportion of people reported to have a job in the community and who reported they chose or had some input in choosing their job*
State N = 127 | NCI N = 3173

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Chose Roommates

Proportion of people who reported they chose or had some input in choosing their roommates if not living in the family home
State N = 172 | NCI N = 7645

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Chose Staff

Proportion of people who reported they chose or were aware they could request to change their staff
State N = 260 | NCI N = 22142

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Decides Daily Schedule

Proportion of people who reported they choose or help decide their daily schedule
State N = 320 | NCI N = 25115

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Decides How to Spend Free Time

Proportion of people who reported they choose or help decide how to spend free time
State N = 322 | NCI N = 25177

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Community Inclusion

People have support to participate in everyday community activities.

Average Times Went On Vacation in the Past Year

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 185 | NCI N = 10484

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Average Times Went Out for Entertainment in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 164 | NCI N = 16952

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Average Times Went Out for Exercise in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 192 | NCI N = 11479

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Average Times Went Out on Errands in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 294 | NCI N = 19643

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Average Times Went Out Shopping in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 303 | NCI N = 21556

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Average Times Went Out to Eat in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 270 | NCI N = 20323

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Average Times Went Out to Religious or Spiritual Service in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 76 | NCI N = 10456

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Went On Vacation in the Past Year

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 324 | NCI N = 24880

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Went Out for Entertainment in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 325 | NCI N = 25117

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Went Out for Exercise in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 323 | NCI N = 25112

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Went Out on Errands in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 324 | NCI N = 25058

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Went Out Shopping in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 326 | NCI N = 25254

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Went Out to a Religious or Spiritual Service in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 325 | NCI N = 24908

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Went Out to Eat in the Past Month

The proportion of people who regularly participate in everyday integrated activities in their communities.
State N = 324 | NCI N = 25160

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Relationships

People have friends and relationships.

Can Go on a Date When Wants

Proportion of people who reported they can go on a date if they want to or can date with some restriction
State N = 184 | NCI N = 12329

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Can Help Other People

Proportion of people who reported they can help other people if they want to at least some of the time
State N = 250 | NCI N = 15897

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Can See Family When Wants

Proportion of people who reported they have family they see and the support needed to see their family when they want to
State N = 218 | NCI N = 14883

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Can See Friends When Wants

Proportion of people who reported they have friends (may be staff or family) and the support needed to see their friends when they want to
State N = 223 | NCI N = 14559

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Feels Lonely

Proportion of people who reported they feel lonely at least half the time
State N = 255 | NCI N = 15765

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Has a Best Friend

Proportion of people who reported they have a best friend
State N = 247 | NCI N = 15794

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Has Friends

Proportion of people who reported they have friends who are not staff or family members
State N = 263 | NCI N = 16249

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Satisfaction

People are satisfied with the services and supports they receive.

Families/family members with disabilities receive adequate and satisfactory supports.

Likes Day Program or Regular Activity

Proportion of people who reported they attend a day program or activity and like their day program or activity
State N = 222 | NCI N = 10902

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Likes Home

Proportion of people who reported they like their home
State N = 268 | NCI N = 16446

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Likes Paid Community Job

Proportion of people who were reported to have a job in the community and who reported they like where they work
State N = 124 | NCI N = 3023

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Wants to Go Somewhere Else or Do Something Else During the Day

Proportion of people who reported they attend a day program or activity and want to go or do something different during the day
State N = 215 | NCI N = 10503

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Wants to Live Somewhere Else

Proportion of people who reported they would like to live somewhere else
State N = 253 | NCI N = 16092

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Wants to Work Somewhere Else

Proportion of people who were reported to have a job in the community and who reported they want to work somewhere else
State N = 122 | NCI N = 2976

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Self-Determination

People have authority and are supported to direct and manage their own services.

Someone Helps Person Decide How to Use Budget/Services

Proportion of people self-directing who reported they have help in deciding how to use their individual budget/services
State N = 23 | NCI N = 544

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Someone Talks to Person about the Budget/Services Available

Proportion of people self-directing who reported someone talked with them about their individual budget/services
State N = 33 | NCI N = 621

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Uses Self-Directed Supports

Proportion of people who were reported to be using a self-directed supports option
State N = 327 | NCI N = 17099

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Work

People have support to find and maintain community integrated employment.

Attends a Day Program or Regular Activity

Proportion of people who reported going to a day program or regular activity
State N = 260 | NCI N = 16343

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Average Months of Employment at Current Paid Community Job

Average length of employment in current job for people who were reported to have a job in the community
State N = 126 | NCI N = 3107

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Has Community Employment as a Goal in Service Plan

Proportion of people who were reported to have community employment as a goal in their service plan
State N = 324 | NCI N = 23910

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Paid Community Job

Proportion of people who were reported to have a job in the community
State N = 323 | NCI N = 24632

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Paid Community Job Gross Wages

Average bi-weekly gross wages by type of community employment support
State N = 120 | NCI N = 2730

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Paid Community Job Hourly Wage

Average bi-weekly hourly wage by type of community employment support
State N = 118 | NCI N = 2694

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Paid Community Job Hours

Average number of bi-weekly hours by type of community employment support
State N = 124 | NCI N = 3112

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Paid Community Job Industry

Proportion of people who were reported to have a job in the community in different types of jobs
State N = 129 | NCI N = 3402

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Receives Paid Vacation and/or Sick Time at Paid Community Job

Proportion of people who were reported to have a job in the community and received paid vacation and/or sick time at their job
State N = 111 | NCI N = 3039

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Type of Paid Community Job

Proportion of people who were reported to have a job in the community by type of employment support*
State N = 122 | NCI N = 2745

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Volunteers

Proportion of people who reported doing volunteer work
State N = 257 | NCI N = 15864

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Wants a Paid Job in the Community

Proportion of people who were reported not to have a job in the community and who reported they would like a job in the community
State N = 134 | NCI N = 10344

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Worked 10 out of last 12 months

Proportion of people who were reported to have a job in community employment who worked 10 of the past 12 months in community employment
State N = 129 | NCI N = 3379

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Access

Publicly-funded services are readily available to individuals who need and qualify for them.

Always Has a Way to Get Places

Proportion of people who reported they always they have a way to get places when they want to go somewhere
State N = 252 | NCI N = 15976

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Gets Needed Services

Proportion of people who report getting the services they need
State N = 319 | NCI N = 24891

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Staff Have Right Training to Meet Person's Needs

Proportion of people who reported their staff have adequate training to meet their needs
State N = 279 | NCI N = 16577

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Service Coordination

Service coordinators are accessible, responsive, and support the person’s participation in service planning.

Case Manager/Service Coordinator Asks What the Person Wants

Proportion of people who reported their service coordinator/case manager asks them what they want
State N = 243 | NCI N = 14898

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Case Manager/Service Coordinator Calls Person Back Right Away

Proportion of people who reported their service coordinator/case manager calls them back right away
State N = 161 | NCI N = 10973

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Case Manager/Service Coordinator Helps Get What Person Needs

Proportion of people who reported their service coordinator/case manager helps them get what they need
State N = 235 | NCI N = 14285

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Has Help Needed to Fix Problems with Staff

Proportion of people who reported who get the help they need to work out problems they have with their support workers
State N = 201 | NCI N = 12135

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Met Case Manager/Service Coordinator

Proportion of people who reported they met their service coordinator/case manager
State N = 267 | NCI N = 15938

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Person Helped Make Service Plan

Proportion of people who reported they helped make their service plan
State N = 188 | NCI N = 13896

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Staff Come When They Are Supposed To

Proportion of people who reported support workers come when they are supposed to
State N = 213 | NCI N = 13796

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