Publications

The following NCI related articles have been published in books, leading journal, magazines, and other media sources:

  • Putting the Research in Context: The Life Experience and Outcomes of Adults on the Autism Spectrum Receiving Services in 29 States

    Hiersteiner, D., Bradley, V., Ne'eman, A., Bershadsky, J. & Bonardi, A. (2017) Putting the research in context: The life experience and outcomes of adults on the autism spectrum. Inclusion 5(1) 45-59 http://www.aaiddjournals.org/doi/abs/10.1352/2326-6988-5.1.45 

  • Race/Ethnicity and the Use of Preventive Health Care Among Adults With Intellectual and Developmental Disabilities

    Bershadsky, J., Hiersteiner, D., Fay, M.L., Bradley, V. (2014) Race/Ethnicity and the Use of Preventive Health Care Among Adults with Intellectual and Developmental Disabilities. Medical Care 52(10)Suppl 3. S25-S31

  • Demographic characteristics, health conditions, and residential service use in adults with Down syndrome in twenty-five U.S. states

    Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Taub, S., Fortune, J., & Bershadsky, J. (2012). Demographic characteristics, health conditions, and residential service use in adults with Down syndrome in twenty-five U.S. states. Intellectual and Developmental Disabilities, 50(2), 92–108. DOI: 10.1352/1934-9556-50.2.92

  • Place of residence and preventive health care for developmental disabilities services recipients in twenty states.

    Bershadsky, J., Taub, S., Bradley, V., Engler, J., Moseley, C., Lakin, K. C., Stancliffe, R. J., Larson, S., Ticha , R. & Bailey, C. (2012). Place of residence and preventive health care for developmental disabilities services recipients in twenty states. Public Health Reports, 127, 475-485.

  • Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states

    Hewitt, A. S., Stancliffe, R. J., Johnson Sirek, A., Hall-Lande, J., Taub, S., Engler, J., Bershadsky, J., Fortune, J., & Moseley, C. (2011). Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states. Research in Autism Spectrum Disorders, 6(2), 741-751.

  • Choice of living arrangements

    Stancliffe, R. J., Lakin, K. C., Larson, S. A., Engler, J., Taub, S., & Fortune, J. (2010, EPublication date, October 3, 2010). Choice of living arrangements. Journal of Intellectual Disability Research, 1-17. DOI: 10.1111/j.1365-2788.2010.01336.x

  • Individuals with intellectual disabilities and augmentative and alternative communication: Analysis of survey data on uptake of aided AAC, and loneliness experiences.

    Stancliffe, R. J., Larson, S. A., Auerbach, K., Engler, J., Taub, S. & Lakin, K. C. (2010). Individuals with intellectual disabilities and augmentative and alternative communication: Analysis of survey data on uptake of aided AAC, and loneliness experiences. Augmentative and Alternative Communication, 26(2), 87-96. DOI: 10.3109/07434618.2010.481564

  • Choice of where and with whom to live (Abstract)

    Stancliffe, R. J., Lakin, K.C., Larson, S., Engler, J., Taub, S., Fortune, J. (2010). Choice of where and with whom to live (Abstract). Journal of Applied Research in Intellectual Disabilities, 23(5), 486.

  • Using consumer survey data in the USA. (Abstract)

    Bradley, V., Taub, S., & Bershadsky, J. (2010). Using consumer survey data in the USA. (Abstract).  Journal of Applied Research in Developmental Disabilities. 23 (5), 469.

  • Adults with Down syndrome who use US developmental disabilities service systems

    Stancliffe, R. J., Lakin, K.C., Larson, S., Engler, J., Taub, S., Fortune, J., & Ticha, R. (2010). Adults with Down syndrome who use US developmental disabilities service systems. Journal of Applied Research in Intellectual Disabilities, 23(5), 482.

  • Satisfaction and sense of well-being among Medicaid ICF/MR and HCBS recipients in six states

    Stancliffe, R. J., Lakin, K. C., Taub, S., Chiri, G., & Byun, S. (2009). Satisfaction and sense of well-being among Medicaid ICF/MR and HCBS recipients in six states. Intellectual and Developmental Disabilities (formerly Mental Retardation), 47(2), 63-83. doi: 10.1352/1934-9556-47.2.63

  • Satisfaction and Sense of Well Being among Medicaid ICF/MR and HCBS Recipients in Six States

    Stancliffe, R. J., Lakin, K. C., Taub, S., Chiri, G., & Byun, S. (2009). Satisfaction and Sense of Well Being among Medicaid ICF/MR and HCBS Recipients in Six States. Intellectual and Developmental Disabilities, 47(2), 63-83.

  • Loneliness, friendship and augmentative and alternative communication (AAC) (Abstract)

    Stancliffe, R. J., Lakin, K. C., & Taub, S. (2009). Loneliness, friendship and augmentative and alternative communication (AAC) (Abstract). Journal of Policy and Practice in Intellectual Disabilities, 6(2), 149-150.

  • Factors associated with expenditures for Medicaid home and community based services (HCBS) and intermediate care facilities for persons with mental retardation (ICF/MR) services for persons with intellectual and developmental disabilities

    Lakin, K. C., Doljanac, R., Byun, S., Stancliffe, R. J., Taub, S., & Chiri, G. (2008). Factors associated with expenditures for Medicaid home and community based services (HCBS) and intermediate care facilities for persons with mental retardation (ICF/MR) services for persons with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 46(3), 200-214.

  • Choice making among Medicaid Home and Community-Based Services (HCBS) and ICF/MR recipients in six states

    Lakin, K. C., Doljanac, R., Byun, S., Stancliffe, R. J., Taub, S., & Chiri, G. (2008). Choice making among Medicaid Home and Community-Based Services (HCBS) and ICF/MR recipients in six states. American Journal on Mental Retardation, 113 (5), 325-342.

  • Living arrangements and well being (Abstract)

    Stancliffe, R. J., Lakin, K. C., Taub, S., Chiri, G., & Byun, S. (2008). Living arrangements and well being (Abstract). Journal of Intellectual Disability Research, 52, 790.

  • Perspectives: National Core Indicators: Ten Years of Collaborative Performance Measurement

    Bradley, V.J. & Moseley, C. (2007). Perspectives: National Core Indicators: Ten Years of Collaborative Performance Measurement. Intellectual and Developmental Disabilities, 45, 5: 354-358.